Congenital Heart Disease Awareness Week:
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- Nearly 1 in 100 babies are born with a CHD.
- There is no cure for CHD. Congenital Heart Disease requires life-long medical care.
- Approximately 25% of children born with CHD will need life-saving intervention as infants.
Did you know heart defects are the most common birth defect?
I had no idea.
Last December my sister-in-law found out her baby had not one heart defect, but three! His heart was backwards and on the wrong side of his chest, doctors couldn't see all of the chambers of the heart. I don't know how she kept things together. I can only imagine. Sometimes we do things because giving up just isn't an option. She was determined to not give up on her child, no matter what! Doctors told her he would be slow developmentally and his chances of survival weren't good. I'm happy to report, he's proven them wrong! Uriah is a heart hero and continues to amaze his physicians and everyone he meets! We're all so happy!
Heart defects are costly- Hospital costs for children with CHD exceeded $5.6 Billion in 2009.
Estimates suggest there are more than 3 million people living with Congenital Heart Disease (CHD).
My nephew, who hadn't come into the world yet, would need a series of open heart surgeries to "fix" his heart. Uriah Michael came into this world at Boston Children's Hospital. He was only four days old at his first open heart surgery, a procedure called the Norwood. He has had numerous Heart Catheters and is on a daily regimen of medications multiple times a day to help manage his CHDs (Hypoplastic Left Heart Syndrome or HLHS, Dextrocardia, and Heterotaxy). He had his second open heart surgery, the Glenn in Boston at 3.5 months.
|Uriah with Dr. Pigula his amazing surgeon.|
Uriah is 9 months old now and has brought so many people together. Through the pain he endures he is the happiest baby I've seen. He is a ray of sunshine with one of the biggest smiles and a giggle that draws people to him.
|Uriah is my #HeartHero!|
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We should all appreciate life in all its forms, appreciate our friends and family. Please, don't take anyone in your life for granted even for a minute.
If you would like to follow Uriah and his family on their journey you can join his Facebook community: Mending a Broken Heart for Baby Uriah